Today is officially summer and I am kinda bummed. Since giving up my driver's license I have found that it is really hard to plan to do anything with my girls. My husband sleeps during the day and works at night so if we plan anything it has to be Wednesday, Thursday, and Friday after 5pm. The zoo closes at 5. Movies are expensive and the baby is quite ready for the movies. They are already going to the public library for the summer reading program thanks to Grandma Mary for taking them. So I went and got some stuff for a few crafts, but they want to do them all right a way. Besides it seems like I am always doing homework for school!
So I am doing research for school and found the link to the Hear See Hope Foundation which raises money for Usher Syndrome Research. Please check it out and donate! I am thinking I would like to raise awareness in my community so if you have any fundraiser ideas please let me know!
www.hearseehope.com
Monday, June 21, 2010
Saturday, June 5, 2010
Moving on and Accepting
Dealing with Usher Syndrome or any other disability is like dealing with death. You have the seven stages of Grief to deal with.
1. Shock and denial
2.Pain and Guilt
3.Anger and Bargaining
4.Depression, Reflection, and Lonliness
5. The Upward Turn
6. Reconstruction and working through
7.Acceptance and Hope
Granted, I haven't gone through all of these and not necessarily in this order. But I have experienced some of these. I have come to the point of understanding that I will most likely go blind. I don't think my family has come to that realization yet, but I expect they will go through some of these steps as well, especially my daughters. All I can do is let them express themselves and love them with all of my heart. I will always be there for them.
So I finally have gotten to the point of acceptance. I accept my fate, I accept my blindness and I accept that there is no cure. So I went and got a tattoo to honor my acceptance. If you don't know me, I love all things Celtic. So I got a triskele with a shamrock in its center to symbolize my good luck because I have it in spades where my family is concerned. I love my tattoo!
1. Shock and denial
2.Pain and Guilt
3.Anger and Bargaining
4.Depression, Reflection, and Lonliness
5. The Upward Turn
6. Reconstruction and working through
7.Acceptance and Hope
Granted, I haven't gone through all of these and not necessarily in this order. But I have experienced some of these. I have come to the point of understanding that I will most likely go blind. I don't think my family has come to that realization yet, but I expect they will go through some of these steps as well, especially my daughters. All I can do is let them express themselves and love them with all of my heart. I will always be there for them.
So I finally have gotten to the point of acceptance. I accept my fate, I accept my blindness and I accept that there is no cure. So I went and got a tattoo to honor my acceptance. If you don't know me, I love all things Celtic. So I got a triskele with a shamrock in its center to symbolize my good luck because I have it in spades where my family is concerned. I love my tattoo!
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